Maureen MacDonald, Minister of Health for Nova Scotia, declined when asked to step in and get Bill treatment at home after it became too late for him to get to Albany, N.Y. Let Maureen know what you think. Her email is:
health.minister@gov.ns.ca
Showing posts with label Minister of Health for Ontario. CCSVI. Show all posts
Showing posts with label Minister of Health for Ontario. CCSVI. Show all posts
Saturday, March 19, 2011
Tuesday, March 1, 2011
Is this Ottawa 2011 or Is it Berlin, 1939?
March 1, 2011
Today, I went on Facebook and the first thing I saw was this
http://www.thestar.com/news/canada/article/946532--ms-patients-to-get-more-help-at-home
I am hoping MSers and friends and relatives will join a letter campaign to Ms. Matthews. Her email address is "Deb Matthews" <ccu.moh@ontario.ca>
Tell her what you think. I did.and here is a copy
Dear Ms. Matthews
Today's news about more aftercare at home is great! Well, it was until the last paragraph where they note who is on your "expert" Advisory Board.
The MS Society and their neuros are NOT experts in MS. That is not an opinion. That is a fact!
So far, people who had Lyme Disease have been misdiagnosed and made to suffer not only the disease long term but the useless and often dangerous treatments these neuros have prescribed. And most of those drugs have not even passed the safety test before they are on the market. We need you to address the Lyme Disease connection and do something forward thinking about the test for it. It is called the Canadian Gold Standard but it should be called the Canadian Fool's Gold Standard. If we want to check ourselves out for Lyme - Gee Whiz! We have to go south of the border. I know that should have been corrected before you got the Ministry but it wasn't. That is not a good excuse for you to carry on with your predecessors mistakes.
Secondly, people diagnosed with MS have left the country to be treated for CCSVI. Judging by the number of people who have had seriously good results, it is my guess that they also, were misdiagnosed. It is for damned sure the neuros never told us about the possibility of CCSVI. In fact, we have the MS Society's Dr. Freedman on video from a tv interview calling CCSVI a hoax, snake oil. Oh, yeah, and offering to do placebo testing - placebo results are something done for drugs, not for medical procedures. And this medical procedure - I have to wonder what kind of med school these guys went to to come up with statements like, "it is dangerous"? My next door neighbour gets venoplasty quite often - she has kidney disease. If it is safe for her and all those kidney patients, why is it so unsafe for MSers? The treatment of MSers in this country and in this province is a fraction of a degree better than that of Dr. Josef Rudolf Mengele - he of Nazi Germany infamy.(That by the way, is not intended as a compliment!) Off the top of my head -
He took vulnerable people and experimented on them. MS neuros take vulnerable people and experiment on them.
He killed people with his experiments. MS neuros have killed people with their experiments.
He lived high on the hog as long as the Nazis were in power. MS neuros are living high on the hog under Your leadership in this Province and under Leona's cross country.
To add insult to injury, having spend personal money to get treatment that should be available in this First World Country, MSers return home and are denied post procedure care. Now you are offering to fix that but you do not seem able to leave the insult out. Putting the same neuros on your "expert" panel is just a little more insult, rubbing salt in the wound. These dudes have been quite verbal about CCSVI and from a negative stance. This is not going to cut the mustard for most MSers. Looks like your logic flew south for the winter!!
You do not need neuro experts - if they knew anything about MS, we would not be in this situation in the first place. They have no idea what causes it, they have no idea how to help get rid of it,; they do not do what should be first step and that is to eliminate other possible conditions like lyme disease and they do not. They do not even seem to know what it is? Autoimmune is a word they coined to cover up their ignorance and then to make money. What you need for experts are some MS patients, an expert on Lyme Disease and the vascular people who are working in fact or at least following the lead of those in other countries. You have Dr. Sandy MacDonald right there in Toronto. Why did you leave him out? He has more knowledge about CCSVI/MS in his pinkie than all the MS neuros put together have in their entire bodies.
From where you sit - the only thing you personally need is a little logic. A little maternal instinct wouldn't hurt either. And the "real MS experts" - the patients.
From where I sit, it sure looks like you and Leona are both sleeping with the enemy, if you will pardon that oft used expression. Canadians used to brag about our Medical system. Now we are more and more coming to the opinion that everyone concerned is on the take from the Big Pharma. Are you on the take? That is not a very pleasant opinion to harbour. I am not the only one with that opinion. It is a political killer. But our opinion can be changed. Of course it would require some logic and some positive action on your part.
A tyrannical government is a tyrannical whether it is voted in or just takes it.
Those are my sincere opinions.
Karen Copeland
--
Shame on Canada!
http://its-time-to-slay-the-ms-dragons.blogspot.com/
Today, I went on Facebook and the first thing I saw was this
http://www.thestar.com/news/canada/article/946532--ms-patients-to-get-more-help-at-home
I am hoping MSers and friends and relatives will join a letter campaign to Ms. Matthews. Her email address is "Deb Matthews" <ccu.moh@ontario.ca>
Tell her what you think. I did.and here is a copy
Dear Ms. Matthews
Today's news about more aftercare at home is great! Well, it was until the last paragraph where they note who is on your "expert" Advisory Board.
The MS Society and their neuros are NOT experts in MS. That is not an opinion. That is a fact!
So far, people who had Lyme Disease have been misdiagnosed and made to suffer not only the disease long term but the useless and often dangerous treatments these neuros have prescribed. And most of those drugs have not even passed the safety test before they are on the market. We need you to address the Lyme Disease connection and do something forward thinking about the test for it. It is called the Canadian Gold Standard but it should be called the Canadian Fool's Gold Standard. If we want to check ourselves out for Lyme - Gee Whiz! We have to go south of the border. I know that should have been corrected before you got the Ministry but it wasn't. That is not a good excuse for you to carry on with your predecessors mistakes.
Secondly, people diagnosed with MS have left the country to be treated for CCSVI. Judging by the number of people who have had seriously good results, it is my guess that they also, were misdiagnosed. It is for damned sure the neuros never told us about the possibility of CCSVI. In fact, we have the MS Society's Dr. Freedman on video from a tv interview calling CCSVI a hoax, snake oil. Oh, yeah, and offering to do placebo testing - placebo results are something done for drugs, not for medical procedures. And this medical procedure - I have to wonder what kind of med school these guys went to to come up with statements like, "it is dangerous"? My next door neighbour gets venoplasty quite often - she has kidney disease. If it is safe for her and all those kidney patients, why is it so unsafe for MSers? The treatment of MSers in this country and in this province is a fraction of a degree better than that of Dr. Josef Rudolf Mengele - he of Nazi Germany infamy.(That by the way, is not intended as a compliment!) Off the top of my head -
He took vulnerable people and experimented on them. MS neuros take vulnerable people and experiment on them.
He killed people with his experiments. MS neuros have killed people with their experiments.
He lived high on the hog as long as the Nazis were in power. MS neuros are living high on the hog under Your leadership in this Province and under Leona's cross country.
To add insult to injury, having spend personal money to get treatment that should be available in this First World Country, MSers return home and are denied post procedure care. Now you are offering to fix that but you do not seem able to leave the insult out. Putting the same neuros on your "expert" panel is just a little more insult, rubbing salt in the wound. These dudes have been quite verbal about CCSVI and from a negative stance. This is not going to cut the mustard for most MSers. Looks like your logic flew south for the winter!!
You do not need neuro experts - if they knew anything about MS, we would not be in this situation in the first place. They have no idea what causes it, they have no idea how to help get rid of it,; they do not do what should be first step and that is to eliminate other possible conditions like lyme disease and they do not. They do not even seem to know what it is? Autoimmune is a word they coined to cover up their ignorance and then to make money. What you need for experts are some MS patients, an expert on Lyme Disease and the vascular people who are working in fact or at least following the lead of those in other countries. You have Dr. Sandy MacDonald right there in Toronto. Why did you leave him out? He has more knowledge about CCSVI/MS in his pinkie than all the MS neuros put together have in their entire bodies.
From where you sit - the only thing you personally need is a little logic. A little maternal instinct wouldn't hurt either. And the "real MS experts" - the patients.
From where I sit, it sure looks like you and Leona are both sleeping with the enemy, if you will pardon that oft used expression. Canadians used to brag about our Medical system. Now we are more and more coming to the opinion that everyone concerned is on the take from the Big Pharma. Are you on the take? That is not a very pleasant opinion to harbour. I am not the only one with that opinion. It is a political killer. But our opinion can be changed. Of course it would require some logic and some positive action on your part.
A tyrannical government is a tyrannical whether it is voted in or just takes it.
Those are my sincere opinions.
Karen Copeland
--
Shame on Canada!
http://its-time-to-slay-the-ms-dragons.blogspot.com/
Saturday, February 19, 2011
Now They Know!
February 19, 2011
Are you two ladies still listening to your "Experts"? If you are, I hope the family of the next Canadian that dies because they were treated with Tysabri on the advise of your experts sues you and your party and your useless experts and the pharmaceutical company. In fact I hope the families of anyone who has ever died from taking this "safe" drug sues you. Ms. Matthews, I know you are only responsible for things that happen in Ontario but I include you because the odds of an MSer in Ontario dying from this legalized drug pushing is quite high due to the number of people you represent here (and because you and Leona appear to have the same standard letter writer). There is a precedent for suing the government. Mr Mulroney did quite well doing it didn't he? And his case was a tad questionable. Ours is not so questionable I don't think.
Knowingly prescribing a lethal drug - Hmmm I would think there is a case for the homicide division of the RCMP here, don't you think. It should not be that hard for them to find a money connection for a motivating factor.
Are your experts telling you that tysabri is safer than Vascular angioplasty? Come on, girls. You both cannot be this brainwashed or is this just stupidity? We voters do expect you elected representatives to use your own heads.
One other thing - Have you noticed there is a total lack of respect here? That is because it is impossible to have any respect for people, especially fellow females (We female voters do expect more heart and less greed or stupidity as the case may be, from females), who have upheld my death sentence by MS. You insult my intelligence. You treat me and my fellow MSers with a total lack of respect. Be happy Leona that I call you Leona. The only other option for me is to call you The Dishonourable Minister.
I think it is time for me to go have a little daydream. My favourite day dream? Why it is where you two ladies find yourself suffering from MS and find yourselves broke from all the law suits and stuck having to live with your own rulings.
I have sent you the news item. Do not say "I didn't know."
Sincerely
Karen Copeland
MSdragonslayer
Now They Know!
While wandering around on Facebook this morning, I found an article on Tysabri.
To say it made me mad is a huge example of understatement. It made me furious! So furious that I sent the following letter to the two women in my life who have the power to do something but who do nothing. Sent a cc to my on MP also. Here it is:
NEW YORK (Dow Jones)--Biogen Idec Inc. (BIIB) disclosed 10 more cases of a rare brain infection among multiple sclerosis patients taking Tysabri, a medication it sells with Elan Corp. (ELN, ELN.DB), bringing the total number of affected patients to 95 as of Feb. 2.
The Weston, Mass., biotech company reported that four more of those patients have died, bringing the total to 20.
Are you two ladies still listening to your "Experts"? If you are, I hope the family of the next Canadian that dies because they were treated with Tysabri on the advise of your experts sues you and your party and your useless experts and the pharmaceutical company. In fact I hope the families of anyone who has ever died from taking this "safe" drug sues you. Ms. Matthews, I know you are only responsible for things that happen in Ontario but I include you because the odds of an MSer in Ontario dying from this legalized drug pushing is quite high due to the number of people you represent here (and because you and Leona appear to have the same standard letter writer). There is a precedent for suing the government. Mr Mulroney did quite well doing it didn't he? And his case was a tad questionable. Ours is not so questionable I don't think.
Knowingly prescribing a lethal drug - Hmmm I would think there is a case for the homicide division of the RCMP here, don't you think. It should not be that hard for them to find a money connection for a motivating factor.
Are your experts telling you that tysabri is safer than Vascular angioplasty? Come on, girls. You both cannot be this brainwashed or is this just stupidity? We voters do expect you elected representatives to use your own heads.
One other thing - Have you noticed there is a total lack of respect here? That is because it is impossible to have any respect for people, especially fellow females (We female voters do expect more heart and less greed or stupidity as the case may be, from females), who have upheld my death sentence by MS. You insult my intelligence. You treat me and my fellow MSers with a total lack of respect. Be happy Leona that I call you Leona. The only other option for me is to call you The Dishonourable Minister.
I think it is time for me to go have a little daydream. My favourite day dream? Why it is where you two ladies find yourself suffering from MS and find yourselves broke from all the law suits and stuck having to live with your own rulings.
I have sent you the news item. Do not say "I didn't know."
Sincerely
Karen Copeland
MSdragonslayer
Friday, December 3, 2010
Letter to Deb Matthews, Minister of Health for Ontario
December 3, 2010
Dear Ms. Matthews
Thank you for responding to my letter to yours re MS.
Ms must be a bigger problem than it appears on the surface – nearly everyone I have spoken to in government has or had a relative with MS. This makes me wonder even more why so little is being done about it.
I also wonder at your claim – and others in government make the exact same claim – to do all that you can “as quickly as we can to determine if it (Angioplasty) is effective and safe for treating MS. Specifically, I wonder why this was not your objective in all these years past when you were approving the drugs that are being doled out ad nausium to MS patients. Drugs such as Copaxone, Rebif, Avonex and Betaseron. I have been unable to find one solitary patient who claims anything good about them and many who claim negative effects. And then there is TYSABRI – apparently responsible for a number of deaths but still being pushed as a “safe” drug treatment. I, myself, was prescribed Gabapentin which left me with a good deal less balance and a good deal more MS misery. I do not take it anymore. In spite of the less than useful, often detrimental effects of these drugs, there was no hue and cry from any government agency about needing to look out for our safety with them. So why all of a sudden, now that we have found an often effective and a good deal less unsafe treatment, is the government messing in something they clearly do not understand or know anything about?
You claim Dr. Zamboni’s treatment is experimental. True enough. But it is helping a lot of people. The above named drugs cost the taxpayer, either personally or by way of his taxes a good deal of wasted money over the years they have been being prescribed. There has been no outcry about wasting taxpayers money when it was definitely being wasted, so why now? Now that it is apparent that the odds are more in favour of it being a better risk for the tax payer? It appears that drugs, both legal and illegal are running this country, not logic or usefulness.
You say angioplasty is an approved treatment in Ontario – just not for CCSVI. Isn’t that what we taxpayers pay you to do – approve useful treatments? This one is useful and a good deal more useful that the drugs you have previously approved. There is no logic to your argument! And there is less logic to forcing Canadians to leave the country for a little relief from this condition and refusing them post operative care when they return. It looks a lot more like spitefulness than good politics. And it appears that there are more personal agendas than public ones at play here. (See attachment)
I am well aware that my government is watching the developments. This however is not a spectator sport. It is a debilitating condition that affects a lot of Canadians and specifically, Ontarioans.
Asking neurologists to review these developments amounts to asking a floor sweeper to do the books or the Taliban to lead Canadians soldiers in Afghanistan. It is not at all swift! Dr. Alain Beaudet is a neurologist. That makes him one of those who have foisted all these useless and sometimes dangerous drugs off on us and one of those who, in all the years they have been at it, still knows nothing useful about MS. Sorry but their interests are not the interests of MS patients. They have made it abundantly clear that their interests lie in getting headlines, and pushing drugs. If it were otherwise, they would have shown some interest in this treatment. They didn’t. They came out immediately and labeled it a hoax. That, Ms. Matthrews, is what is called a closed mind.
You and the Federal government have committed yourselves to speed up the development?? You call vague referrals to ‘years‘ of study speeding it up?? What we want are immediate trials with a 6 month limit for the first report, followed by yearly reports. There are a lot of over 50 (years old) people with MS. We have been misdiagnosed, treated like mental patients, used as guinea pigs and other less than decent treatments from both medical practitioners and politicians for a very long time. First of all, we do not have time for your 10 year studies. I am already turning 65 years old next week. Secondly, we are fed up with being treated like second class citizens in our own country.
I have come to expect closed minds from the Conservatives. I am disgusted and dismayed that it is, it seems, a condition that applies to all politicians. I expected more from you than politics as usual.
Sincerely
Karen Copeland
Dear Ms. Matthews
Thank you for responding to my letter to yours re MS.
Ms must be a bigger problem than it appears on the surface – nearly everyone I have spoken to in government has or had a relative with MS. This makes me wonder even more why so little is being done about it.
I also wonder at your claim – and others in government make the exact same claim – to do all that you can “as quickly as we can to determine if it (Angioplasty) is effective and safe for treating MS. Specifically, I wonder why this was not your objective in all these years past when you were approving the drugs that are being doled out ad nausium to MS patients. Drugs such as Copaxone, Rebif, Avonex and Betaseron. I have been unable to find one solitary patient who claims anything good about them and many who claim negative effects. And then there is TYSABRI – apparently responsible for a number of deaths but still being pushed as a “safe” drug treatment. I, myself, was prescribed Gabapentin which left me with a good deal less balance and a good deal more MS misery. I do not take it anymore. In spite of the less than useful, often detrimental effects of these drugs, there was no hue and cry from any government agency about needing to look out for our safety with them. So why all of a sudden, now that we have found an often effective and a good deal less unsafe treatment, is the government messing in something they clearly do not understand or know anything about?
You claim Dr. Zamboni’s treatment is experimental. True enough. But it is helping a lot of people. The above named drugs cost the taxpayer, either personally or by way of his taxes a good deal of wasted money over the years they have been being prescribed. There has been no outcry about wasting taxpayers money when it was definitely being wasted, so why now? Now that it is apparent that the odds are more in favour of it being a better risk for the tax payer? It appears that drugs, both legal and illegal are running this country, not logic or usefulness.
You say angioplasty is an approved treatment in Ontario – just not for CCSVI. Isn’t that what we taxpayers pay you to do – approve useful treatments? This one is useful and a good deal more useful that the drugs you have previously approved. There is no logic to your argument! And there is less logic to forcing Canadians to leave the country for a little relief from this condition and refusing them post operative care when they return. It looks a lot more like spitefulness than good politics. And it appears that there are more personal agendas than public ones at play here. (See attachment)
I am well aware that my government is watching the developments. This however is not a spectator sport. It is a debilitating condition that affects a lot of Canadians and specifically, Ontarioans.
Asking neurologists to review these developments amounts to asking a floor sweeper to do the books or the Taliban to lead Canadians soldiers in Afghanistan. It is not at all swift! Dr. Alain Beaudet is a neurologist. That makes him one of those who have foisted all these useless and sometimes dangerous drugs off on us and one of those who, in all the years they have been at it, still knows nothing useful about MS. Sorry but their interests are not the interests of MS patients. They have made it abundantly clear that their interests lie in getting headlines, and pushing drugs. If it were otherwise, they would have shown some interest in this treatment. They didn’t. They came out immediately and labeled it a hoax. That, Ms. Matthrews, is what is called a closed mind.
You and the Federal government have committed yourselves to speed up the development?? You call vague referrals to ‘years‘ of study speeding it up?? What we want are immediate trials with a 6 month limit for the first report, followed by yearly reports. There are a lot of over 50 (years old) people with MS. We have been misdiagnosed, treated like mental patients, used as guinea pigs and other less than decent treatments from both medical practitioners and politicians for a very long time. First of all, we do not have time for your 10 year studies. I am already turning 65 years old next week. Secondly, we are fed up with being treated like second class citizens in our own country.
I have come to expect closed minds from the Conservatives. I am disgusted and dismayed that it is, it seems, a condition that applies to all politicians. I expected more from you than politics as usual.
Sincerely
Karen Copeland
Subscribe to:
Posts (Atom)