Showing posts with label Vascular Angioplasty. Show all posts
Showing posts with label Vascular Angioplasty. Show all posts

Monday, February 21, 2011

The Pressure is on!

February 21, 2011


The Pressure is on and the Steel is beginning to Bend!


Look what I found when I opened my email today! I think I now know how Egyptians felt a few days before President Hosni Mubarak gave up the fight - Knowing it wasn't over yet but seeing the sunrise becoming  visible on the horizon! My thanks to Wayne Feaver for sharing this with us.


Wayne Feaver
Wayne Feaver21 February 2011 at 13:46
Pressure on province to allow MS treatment



Pressure is increasing for the Ontario government to allow a procedure to treat multiple sclerosis.

Four Chatham-Kent residents, who have each spent thousands of dollars and traveled abroad for the procedure, met with Chatham-Kent's mayor Friday.

All four said their health has improved immensely after having the costly out-of-country procedure, which involves widening a vein in the neck or chest.

Sheila Clements, chair of the local MS chapter, said she is "very impressed'' with the results in those who have had the procedure.

"It should be available here at home,'' she said. "And it is for people that don't have MS.'' Sandra Kniffen, 57, spent nearly $15,000 to travel to India for the treatment in August.

"I can now walk without a cane,'' she said. "I'm less fatigued and I have good balance. Also, both my hands work. It was worth the trip for the treatment.''

Paula Brown, 50, of Chatham, took a second mortgage out on her home to pay the $18,000 for her procedure in Mexico.
Like Kniffen, she has experienced major improvement in her health.

"I don't have the fatigue that I had before the procedure,'' she said. "I used to have to lay down flat during the day. Now I hardly sit down and my balance has improved 70 per cent.''
She said the weakness on her left side has also disappeared.
Wendy Primeau, 46, spent $10,000 for the procedure in India in July. "Before I got around in a wheelchair,'' she said. "Now I use a walker.''

She said she is no longer fatigued and feels bright. "It's too bad we have to travel half way around the world for treatment,'' she said. "And most MS patients couldn't afford it to begin with.''

Rick Francis, 50, spent $12,000 for his procedure in Poland in July.

"My balance is much better and I have the use of my right hand and arm,'' he said.

Francis said his quality of life has improved immensely.
"My fatigue is fixed and my heat intolerance is fixed,'' he said.
All four MS patients said there is no reason why the procedure couldn't be offered at home.

"It's all about politics and dollars,'' said Clements. "Doctors can and do perform the procedure here at home provided their patients don't have MS.''

Mayor Randy Hope said he plans to arrange a meeting with the province's health minister at Queen's Park to push for a veenoplasty procedure that is not available in the province or Canada.

"It doesn't make sense that people have to borrow money and mortgage their homes to get treated out-of- country.''

** Just so we do not end up being called plagiarizers, Wayne tells me he did not write this and I didn't either. My best effort to find its origin - Chatham Daily News (I think).

Friday, December 24, 2010

Happiness is......................

December 24, 2010



Happiness is......................

Vascular Angioplasty !

Well it's not here in Canada yet but it is available to those who can afford to leave the country to get it, and I really and truly think it will be here soon. This has been the most interesting and hope filled year in a good many for me and I am sure for a good many other MSers.

There were days when there was not much point in even getting up but since CTVs W-5 show last year with Dr. Zamboni I have had the best motivation to get up - the need to fight and get this made available here in Canada. In the meantime I have learned a lot about the condition and about the treatments, both good, bad and indifferent. I have found enzyme therapy for myself that is working for me and I rather think that a combination of angioplasty and enzyme therapy might end up a good working combination. But enzymes do not need to be fought for - they are out there. Vascular angioplasty, unfortunately does need to be fought for.

Serracor-NK!

I started taking these about a month ago. And I had a side effect I could live without – an over active sinus! I sneezed 24/7 and I dripped enough to launch the Queen Mary!  SO……………………..I wrote the company about my side effect - it is rare according to them and in fact, no one I know who has tried them - 3 people so far, have not had this problem. So I am back on them taking a antihistamine at the same time and doing fine. I am going out tomorrow (to a friends for Christmas) without my walker - just taking my cane which I am bringing out of retirement. My energy level must be higher - I have gotten a good deal more done than I used to. Energy level is perhaps harder to notice until after you have done something. I do not feel energetic but I also do not feel so worn out so fast either.
 It has been years since I have said, "I'm starving".  I am never hungry and eat because it is the polite thing to do when visiting or once a day because if I don't I will starve to death. Today when I got up I was starving like in the good old days. Another of those things I never really gave much thought to.

I had most of my nose removed when I had cancer there. After the operation I figured I could not smell because they had removed all the smell sensors. Lately, I find myself noticing smells - like I got on an elevator after someone who was wearing Old Spice and I could smell it. Amazing and totally unassociated with MS. Perhaps if I can smell food cooking again, I will be hungry more often??

I have been self catheterizing for over a year because I could not squeeze  even a drop. Now I am getting back to normal with my bladder. Not there yet but getting there and do not catheterize as often any more.

About 15 years ago I was diagnosed with irritable bowel syndrome. Then I was told it wasn't that - it was MS. Doesn't matter what it was because "was" is the right tense to be using. That is all working absolutely normally again. THANK GOD!

The cog fog is still showing it's ugly face - some days worse than others. I still get headaches but no where near as many. The balance is still off but definitely getting better at least for short jaunts. I still dare not turn around in a hurry or I end up face down on the ground. The fatigue is still around but no where near as bad a it has been. I feel the blood flowing through my useless right hand and it is now warm to the touch instead of icy cold all the time. Unfortunately, I still cannot feel what I am holding so still drop tings when my concentration is broken.

 It is too bad that it is impossible to get an ultrasound on my vascular system - I wonder if I have blocked veins and if I do, are these enzymes are helping clear them up? Perhaps they could replace the blood thinners being given to angioplasty patients. Perhaps angioplasty can be reserved for only the worst cases of blocked veins? Perhaps if they are taken post angioplasty, they would cut down or maybe cut out the need for redoing the procedure? I guess we'll never know cause I can't get the ultrasound.

 Anyway, I have been on them only about a month and I am quite happy with the results. This in itself is quite a statement to be reading from me - I was a bit of a skeptic when I first got them!

 Tomorrow is Christmas so I wish everyone here a very Merry Christmas and a Happy New Year!!


P.S. Want to read more Adventures of 21st Century MSers?

http://www.facebook.com/notes/arlene-pellar-hubbard/year-end-thanks...

http://ccsvi-ms.ning.com/profiles/blogs/the-liberation-hymn


http://ccsvi-ms.ning.com/profiles/blogs/christmas-came-early-for-me




Have a Happy!!
Karen - MS dragon Slayer

Monday, December 20, 2010

We Expect Our Women in Politics to Roar, not Mewl

December 20, 2010




           My Letter to Ministers of Health, Ontario and Federal - it went out today.

Until 1929 women were not legally recognized as “persons” in Canada. We, women, fought long and hard for that distinction. We, women,  followed that battle with one that allowed us to vote and then another to allow us to have seats in Parliament. One would think that having fought so hard, we would work even harder to convince everyone that we deserved it because we were, after all, capable of reasonable thought. And furthermore we could now use that status to help other Canadians in ways that only other women know are important. You know - women as nurturers.

Well that was the idea until you two ladies showed up and proved that theory wrong.

More women than men suffer from MS. We need help. Help is out there. But instead of acting like women and having us hear your roar, we are instead subjected to drivel that comes straight out of the mouths of self serving men such as Mark Freedman, Alain Beaudet and Yves Savoie but it is served up by two women, who should be our champions.

But champions for women and men with MS you are definitely Not! How do I know? Well aside from the fact that you parrot three men who have their own agendas, you can't be bothered to respond to anyone who writes you; the odd time you do it is a form letter and clearly the wording on cigarette packages is more worthy of your time than the 76,000 Canadians with MS.

Well the cigarette thing is getting old and stale. It is sometimes downright idiotic - eg  Vogue's package warns that it causes impotency. Here is a wee history lesson. After WWII, hoards of people were smoking, including women who would not have dreamed of smoking before the war. After the war we had a baby boom. Correct me if I am wrong but if smoking causes impotency, how the sam hell did a baby boom come about.  It is not even logical. Do not mistake this for a pro smoking statement - it isn't. But I fail to see how packaging of anything is more important than people suffering from MS.

Form letters are insulting.

And those three men are the last men on earth you want to rely on. Read the drivel from Alain Beaudet at December 7th's Parliamentary Subcommittee on Neurological Disease. Listen to Mark Freedman on CTVs w-5 show or go and read all the misrepresentations on the MS Society site that Yves Savoie obviously approves of.

When are you going to start thinking................like women who care. When are you going to cast aside those props and start acting based on logic and compassion? When are you going to start listening to the Canadian people - 75%, according to Angus Reid,  who think vascular angiopathy should be allowed in Canada.

When, ladies?

Sincerely

Karen Copeland