Wednesday, March 16, 2011

Realistic Expectations

Realistic Expectations

Since this CCSVI Treatment became news back in 2009, I have watched (with envy) all the good pioneers we have among us who had the money, the courage and the Hope to give this a try. I have read a lot of really good results and I have joined others in aching over their lack of results.

Today, on Facebook, I read an item that puts things in their place; that make me sit back and be realistic in thinking about this treatment. I am going to share that with you here.

Michelle Walsh


I just want everyone who is going into their CCSVI Treatments soon to be in a realistic frames of minds so you don't set yourself up for disappointment.

I know there are alot of "Before" and "After" videos out there to watch and this is good to show you there is a reason to have HOPE. But what you need to know is we all experience different results after CCSVI and this takes months and months for some to even notice anything. This treatment first and foremost gets your blood flowing properly again and if this helps slow progression down of your MS then that is so worth it!

I did not have high expectations going into this except that I had nothing to loose and everything to gain by trying. I now have confirmation from my MS Neurologist that my SPMS in now "Clinically Stable" and this was all I could have ever wished for as we all know there is nothing that does that.

I just want you to remember there is a role you have to play in this too. We don't just get treated and then magically we are better. We still have MS. You have hard work ahead of you too. Not only do you need to start eating better for your vascular health but supplements to help with keeping the inflammation of your nerves down etc, exercising/physiotherapy to work on your weak and atrophied muscles, learn how to relax/meditate, and many other aspects to healing. This takes time and doesn't happen overnight. By these amazing Doctors who put you back in the 'Awesome Zone" of proper blood flow is a gift and not to waste that and enjoy everyday you wake up and have HOPE with this awful MS Monster we have. A cold/virus can make you think you have restenosed and its hard to not get anxious but really learning how to relax and just take it easy will help before you set the "Panic" button off. But remember if you do not feel right or you feel something might be going on then you need to call and talk to the office here right away the Doctors need to know this so they can help you plan the best course of action to take.

I never noticed my improvements at first that was my husband who did and he was also the one that said "Any improvements you get to help your MS Symptoms is like icing on a cake from here on in because you have had MS for 19 years-your whole adult life who knows if you have permanent damage?"
I have also had good days and bad days this is typical from what I have heard from other friends with all of this. It is what we refer to as the "roller coaster" ride. This group was created by patients for patients and we are all in this together and we are in this group to be positive and support to one another. So have a great day everyone!!

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